Patient Stories

PCDH19-Related Epilepsy: Walters Family

Walters Family Pcdh19 1

Diagnosed with PCDH19-related epilepsy at 10-months old, Violet’s reality is one of fearing when and where her next seizure will occur. She spent many of her early years in ambulances, emergency rooms, and intensive care units. Scared and uncertain of her daughter’s future, her mother Julie co-founded the PCDH19 Alliance so that children would not be alone in their fight against the disease.

Violet’s persistence and strength has helped her find joy in everyday life. With a passion for dance and the performing arts, she hopes to achieve her dreams of becoming a professional ballerina dancer.